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Xeroderma Pigmentosum Society - http://www.xps.org
Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program. |
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XP Support Group - http://xpsupportgroup.org.uk
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions. |
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Children of the Moon - http://www.moonchildren.com
A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum. |
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National Organization of Rare Disorders - Xeroderma Pigmentosum - http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Xeroderma%20Pigmentosum
Offers alternative names, a general discussion and resources. |
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Xeroderma Pigmentosum - http://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html
An article about this disorder in English and Italian along with some images. |