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DebRA of America - http://www.debra.org/
Offers information, news, newsletters, support, and resources. |
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DebRA UK - http://www.debra.org.uk/
Features organization background, information about the disorder, fundraising and research details, and news. |
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EB Medical Research Foundation - http://www.ebkids.org/
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information. |
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DebRA International - http://www.debra-international.org/
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums. |
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International EB Forum - http://www.internationalebforum.org/
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals. |
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EB Info World - http://www.ebinfoworld.com
Information, mailing list, pictures, and help for new parents. |
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DebRA Canada - http://www.debracanada.org/
Includes articles, news, and information about this genetic disorder. |
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Jonathan's EBzone - http://www.ebzone.bravehost.com
The author shares her son Jonathan's crusade and life with Epidermolysis Bullosa (EB), a rare genetic disorder. |
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Epidermolysis Bullosa - Through the Eyes of a Patient - http://www.ebpatient.com
A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition. |
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Cristina's Castle in the Clouds - http://cristinascastle.homestead.com/
Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder. |